BBC On The Record - Broadcast: 21.05.00

Film: TERRY DIGNAN finds that the elderly resent the Governments failure to pay for their nursing care.



TERRY DIGNAN: At an exercise class run by Age Concern in York, elderly citizens work out, slowing the process of physical decline. They've paid their dues and expect to be treated fairly if they do succumb to frailty or disability. To add to their disappointment over small pension increases, there's resentment too that under Labour, they're still being forced to run down their savings and sell their homes when they do need long term care. MURIEL: If you work hard all your married lives, you're thrifty and you've managed to save a little nest egg, you're penalised and you have to pay. VERA: You have worked and saved for it and it should go to your children. DIGNAN: The Government's long-awaited decision on how to fund long term care is certain to affect its ability to regain the confidence of older voters. They expect Labour to keep its promise to end the injustice caused by the way care is currently paid for. Labour came to power in Nineteen-Ninety-Seven promising to address the biggest grievance of many older voters. BLAIR: I don't want a country where the only way pensioners can get long term care is by selling their home." BURSTOW: Since he's come to power over a hundred thousand people have had to sell their homes, and I think many people quite rightly feel betrayed. The promise before the election was very clear. The promise has not been acted upon and it looks now as though we won't get any delivery from this Government on long term care this side of a general election. DIGNAN: If nursing care in a hospital is, rightly, say older voters, provided free of charge by the National Health Service, then why should they have to pay for it in a nursing home? Those needing nursing care are means tested to decide what they should pay towards the bill. Assets - such as an individual's home - and savings are assessed. Anyone with more than sixteen thousand pounds' worth must meet the full cost. SQUIRE: I think it's a fundamental injustice that someone who has a chronic illness like dementia, Alzheimer's disease, is expected to pay for their nursing care, because inevitably the disease means that eventually they will need nursing home care, whereas someone who is termed as having an acute illness like cancer, which may nevertheless require several years of nursing and medical support and care is entitled to entirely free NHS provision. DIGNAN: Charlie Squires has Alzheimer's. The NHS won't pay his Devon nursing home's three hundred and fifty pound a week bill. And nor will social services because Mr Squires owns a house worth more than sixteen thousand pounds. His son intends persuading the courts it's morally wrong that the health authority won't fund his father's care. SQUIRES: My father has worked all his life, paid his dues, never complained, as far as I can recall never had a day off work, he's never been unemployed and now at the, in his last remaining years he's being stripped of his assets and told that he's got to pay for something that everybody else receives completely free of charge. DIGNAN: Labour set up a Royal Commission to find a solution to the problem. It said residents of nursing homes should continue to pay towards their accommodation and living costs. But the means test would be less stringent. The threshold for taking assets and savings into account would rise from the current sixteen thousand pounds to sixty thousand pounds. But the Commission agreed no one should have to pay for their nursing care. It would be free, as it is in hospital. The Commission then went further, arguing that the costs of personal care should also be met - this meant care involving touching such as combing hair and helping with dressing and bathing. The Commission estimated it would cost in total up to one point two billion pounds in extra public spending to provide free care. HINCHCLIFFE: Nobody objects to paying the board and lodging costs, the accommodation costs which would - the food costs which would normally be - would apply any set of circumstances but the personal care should be supplied free as it used to be within the original concept of the welfare state and the NHS. DIGNAN: But two members of the Royal Commission disagreed. Their minority report said making all care free would be too expensive. Whilst accepting nursing care should be free, they said personal or social care should continue to be means tested. And whereas the Commission's majority said the threshold for paying the full bill should be raised from sixteen thousand to sixty thousand pounds, the minority proposed thirty-thousand. The majority's proposals would require an extra one point two billion pounds from the Government. The minority's recommendations, at a hundred and ten million pounds, would only be a fraction of that cost. The minority report said if all care was made free, only the better off who currently pay for private nursing care would benefit. The poorest have to rely on what social services can afford. And that's not much. LIPSEY: The trouble with free care for all is that it is extraordinarily expensive and all the money goes to people who are relatively well off at the moment, none of it goes to poorer people, and more important none of it goes to the improved services, which is really what the, the old people in the greatest need are crying out for. RACHEL SQUIRE MP: The present system hits hardest those who worked all their lives, paid their taxes and national insurance, put some money aside, many sought to buy their own, own home, but are just, aren't particularly well off, but are just two or three pounds a week maybe above the line on which they could qualify for free care or for falling below the means-tested limit. DIGNAN: Here at the Department of Health, ministers and their civil servants have been trying to distinguish nursing care from personal care. Those who are sceptical of ministers' motives believe the whole exercise is being driven by the Treasury just across the road. The aim, it's argued, is to find a definition of nursing care which minimises the cost to the Government. PAUL BURSTOW: I think the Government is not so much in search of a, a definition. It's in search of the way to spend as little money as possible on this problem. The definition they're likely to be going for will be so tight that anything really to do with the basic intimate care of a person whether it be bathing, helping them get dressed, helping with feeding and so on, essential elements of what people would think should be provided free will not be provided free." DIGNAN: Many frail elderly people, like this man, live in their own home. The Royal Commission wanted more money to be spent on helping people stay in their own homes. But the minority claimed this would be impossible if all care in nursing homes was made free. LORD LIPSEY: The most severely disabled old people living at home get just four hours help a week from their local councils with their care. That's palpably inadequate for all their various needs and that should be greatly increased. But the money to pay for it has to come from somewhere, and it has to come in my view largely from Government, and that's why we can't afford to do that and to do free care too. DIGNAN: In York one solution to the problem is being tried out by the Joseph Rowntree Foundation. When you buy a home at Hartrigg Oaks, you are guaranteed nursing care - if you ever need it - at no extra cost. The idea is to take away the anxiety many elderly people feel about how they will pay for care. And, importantly, the emphasis is on care in your home. A year after buying her property, Verity Grob had a stroke. After a spell in hospital and Hartrigg's care centre, she's now back at home because help is available to her. VERITY GROB: After being away months, in hospital for months and then over there for months, it was wonderful to get back to my own, my own bed which I was longing to get back to. DIGNAN: Lunch is only a short walk away for those who want it. Hard-pressed local authorities can't provide the kind of service on offer here. UNNAMED MAN: "Well. look, I've got ten pounds." UNNAMED WOMAN: "It's alright I've got plenty of change." DIGNAN: But inadequate home care does not save money overall, it's argued. RICHARD BEST: People are getting admitted into hospital much earlier than they might have done, the number of emergency admissions of older people has gone shooting up. People who just have something relatively minor like flu can get into serious difficulties if they are not getting attention and help in their own home. .That is a great cost to the state. So there are false economies in not spending money on care in the community which is where we think the main emphasis of new spending should be. DIGNAN: The first signs of sunshine have brought the veterans of bowls out on to the green. Cornwall has a large elderly population. If they are to live at home as they get older, it will require higher levels of taxation. That's what happens in Scandinavia. HINCHCLIFFE: We have a situation in this country where there's a consensus around low taxation. We get lower public services, we get - we lessen the ability to enable people to remain independent, to have choice in old age or in disability, that is afforded to people in other countries such as Denmark. LORD LIPSEY: Something like sixty per cent of national income goes in taxes. Six pounds in every ten you earn going in taxes, in the Scandinavian countries, um and it really doesn't seem that that is politically possible in this country and therefore we face hard choices that they don't face as to whether it's to be better services or free services. DIGNAN: Making available to all the care on offer at this nursing home may well require Scandinavian tax levels. The minority members of the Royal Commission suggested an alternative - private insurance. The better off could then pay for their care and leave money to their children. LORD LIPSEY: It's absolutely right if people want to leave an inheritance to their children that is their, their right. What is not reasonable is that they expect the State to subsidise that inheritance by making all their care free. If they want to leave an inheritance they can do so but they should insure themselves privately for their care costs so they can leave their money in full to their children if that's what they wish. SQUIRE: In that most privatised of health care markets the United States, only five percent of the population have insurance to deal with long term care. You're talking about very expensive premiums and frankly you're talking about a market that isn't interested in anyone who has any kind of blemished health record. DIGNAN: Retirement brings with it new opportunities, the chance to learn new skills. At the last election many elderly voters changed their political colours. But they've been disappointed with recent pension increases and fear the Government may fail to design a fairer system for paying for care in old age. UNNAMED WOMAN: "I changed from being a Conservative and I voted Labour for the first time expecting, you know, to get a better deal from them because they promised so much but unfortunately it hasn't materialised." SQUIRE: Their perception and their feeling is we don't feel that we've received what we paid for all our working lives and I think that section of the population who have a lot of votes will be looking very, very keenly at what the Government's decision will, will be. DIGNAN: Even though many elderly people try to keep fit and active, they may still need care one day. When it set up a Royal Commission, Labour raised expectations it would address their anxieties over how to fund long term care. If Labour disappoints those expectations it risks sending many older voters back to the Conservatives.
NB. This transcript was typed from a transcription unit recording and not copied from an original script. Because of the possibility of mis-hearing and the difficulty, in some cases, of identifying individual speakers, the BBC cannot vouch for its accuracy.